West Virginia

Kendra and I made it home about 4:30PM yesterday.  Sorry I was very tired and just tried to relax and catch up with Kiristen.  This trip was very hard on her as it had been a long time since she had been away from us for this long. (During Transplant Kiristen was only away from me one week).  Kendra tolerated the traveling alot better than usual,  and I was pleased with that.  I am still waiting on her GAG levels, but Dr. Davies did call me on the way home yesterday and had reminded me that as long as Kendras little boy cells remained in the area they are in we were ok, she would have to drop to 10% AND her GAGS be rising to initiate any ERT or a second transplant.  So we will continue to pray and moving forward with our other issues.  She did caution me as to not let Kendra get sick between now and April as it could delay her surgery and put us behind.  We will now be able to finally get the Chicken Pox vaccine and Michelle will contact Jill here at home for our Pre-Op physical and to get that vaccine taken care of.  Will update soon and check back periodically as I am working on changes to the blog and some photos too.  God Bless