I know it has been forever and I just keep putting it off but here is a quick update on us.  In April we found out that Kendras engraftment had finally turned around  she went up 7 percent to 42 little boy.  We are praying this will continue and of course Stella was well pleased.  Her GAG levels continue to improve as expected.  We have had a rough summer so far.  We were in the middle of the storm that hit West Virginia June 29 2012.  We had very little structure damage just the privacy fence, but we did without power for 6 days and lost all of our four freezers of food.  Kendra is in Extended Summer School for special education as she is still unable to write and the school feels this will benefit her with entering Kindergarten next year.  We are now working with Dr Cornwall (ortho) for her hands.  She is locked and unable to do alot of fine motor activities like writing etc.  We went today for her pre-op physical and her last vaccination for school and all went well.  Her surgery is next Tuesday at 6:00am, and I will take my computer and update that night.  They are going to do carpel tunnel on both hands and trigger release on her left hand only as they feel her right hand is to far gone to work on.  I intend to try and convince them to try at least.  Here is a few new photos, she looks and is doing GREAT!