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Thursday, July 14, 2011

Long Overdue

Sorry it has taken me so long to update, but everything has been pretty crazy lately.  Work is triple time, and have a couple new large projects at home, and of course the two little ones keep me very busy.  Enough excuses lets get to the important stuff.

We arrived Sunday at our ususal Extended stay and ran into a mountain of issues which pushed us elsewhere but could only stay one night.  There is a race here this week and there is not alot of options.  So on day two we moved again to Creek Rd. (which I highly recommend to our cchmc families  the place was nice comfortable and very reasonable).  When they decided to add an appointment for Friday that hotel was as well full so we moved again........to a dump   we were there all of 5 minutes til I was on the phone moving again, and calling guest services for assistance again.  They were able to help us find a place in Florence (great place and reasonable and CLEAN)  anyone needing info let me know and I will send it toyou.  Unfortunately not one time was we offered the Ronald McDonald house again!  On neither of the four other hotels comparing to the price we had been paying at our normal hotel, I really pushed the issue that it was out of our range but there was no offer  again!!  Oh well on to the big stuff.

                                          
Xray 1 is from March 2011, before surgery.  Xray 2 is from Tuesday.  You can see the improvement as her corrections is now 0.  Dr Jaine and Dr Crawford are extremely please with her recovery and has started weining her from her brace.  We will not see them again for 9 months, but before we come back in October for her yearly checkup they have me on a schedule to have her brace off all the time.  She has become alittle to accustomed to it and seems to like it more that I like but it is her security.  I am still waiting on the decision about school and her assistance needs. 

                                   

Both of these hip xrays are from this visit (you can see the hardware in her back, oh and you gotta love the technicians comments on the second one  lol).  The first one was taken with her brace on so dont be alarmed at the extra loops and rivets you see in the front lower quadrants.  It took three of us to hold her for these and difficult was not the words to discribe her emotions.......Kiristen thought we were killing her.  I requested this visit as she had been expressing increased pain in her hips and knees since her surgery.  I wasnt sure if it was due to a change in her structural balance or something more complex.  Dr Tamai assures me that all is the same but he does intend to proceed very soon, the goal was age 4 for working on her hips and knees.  So just as I thought we were going to go home early due to an appointment cancelling on Thursday I was notified that Dr Jaine had approved a sedated MRI for
Friday at 2:00.  This was needed from both sides of ortho before our return in October.  We will then make a decision about repairing her hips and knees.  We have also been referred to add Dr Cornwell to Kendras team beginning in October as he is the specialists for hurler hands. 

Here is a few additional pics that I hope you will enjoy.  We have tried to do alittle site seeing and relax alittle while we are here.  The last time Kendra was too little to enjoy the zoo, edens park, aquarium, plus a couple more.  I dont know about them but they have wore me out.  But Ive enjoyed every minute watching them learn and love together.....  Enjoy as I have done...........................



                                                


These are from July 4, and the Botanical Gardens in Cincinnati.  Kiristen picked out these as they are her favorites..




 





 
      
Thanks again for checking in and sending love and prayers. 

Good Night :)

Now this one takes the cake