One Week......

Today we have been home for one week and I need to catch up.  Things have changed since we got home.  But first the good stuff.  Kendra's GAG levels came back as "appropriate and stable" as labled by Dr. Leslie in genetics.  Her score was 17!!!  They want her to remain below 30.  Now surgery........ We are having Kendra's pre-op physical done Saturday here at home as the plans for putting her tubes in at the same time of her spine surgery in April have changed.  Dr C and Dr Jayne have ruled that combinding the surgeries would be to dangerous as a risk of spreading an infection from her ears to the spine and hardward.  But the ears have to be done 3 weeks prior to any spine surgery!!!  Yep you guessed it Cincy here we come.  We will leave Sunday for her surgery Monday morning.  Our time is 914am report to surgery and proceedure to begin by 1045.  She will remain inpatient over night and as long as all goes well we will come home Tuesday afternoon.  I promise to fix this page and get the other pages added as soon as I can.  God Bless :)